Boy, what a day. This poor kiddo has been in some major pain. Her leg has been really hurting, and it goes anywhere from walking on her toes to screaming and crying as she collapses on the ground. Other times she seems fine, which is the weird thing. Her class had a trip to the gymnastics center but she didn't get to do much of anything because of the pain. We went to the doctors office to get her checked out before leaving for Primary and her doctor thought it was probably just growing pains but wanted to check with an x-ray. But seriously?! An hour later we find out that the doctor ordered an infant full body scan and they couldn't get a new order written because the doctor was at lunch. So I canceled the scan and we headed to Primary. I contacted the nurse from Spina Bifida Clinic and she scheduled for us to see a doctor there about the leg because we are worried about it being her spine retethering.
We are waiting to see if we can figure out the x-ray information. Thankfully they had some toys because these kids were SO bored.
It's always so refreshing to get to the Ronald McDonald House. We have to meet with a dietician, a nurse, and now another doctor about her leg and I'm just so happy that we can get to the house and relax. They know us and they love little Grace and Levi, and they give us so much attention and support. We have dinners made for us all, there are games and activities and it's just wonderful. After we ate we went and made a pinata (well, Grace and I) while Daddy and Levi hung out together. Grace had such a great time plastering the balloon with glue and paper. Talk about sensory awesome! And since it was Cinco De Mayo, they had chips and salsa for the kiddos to eat. After we made her pinata, we went out back of the house and they had awesome things to play with! She loved dressing up as a fire fighter, and that is where we found daddy and Levi playing!! It was so cute to see them up there in the firehouse fort.
Who knows what tomorrow brings? At least we are in the right place for Grace and to try and figure out what's wrong with her leg.
Look at that awesome girly!
There is the fire boy!!
And my little girl turned....firefighter Grace!!!
AHHH!!! Grace is spraying me!
Amanda
No comments:
Post a Comment
Thank you for messaging me! I love to hear from those that have visited :)