I'm so sad to say that one of Grace's favorite books have met it's death. I am so sad because she would ask for it all the time...over and over. She'd sit in her room and read it by herself, have her home intervention therapist read it to her, and she'd talk to herself in bed about "Mis-ser Pout-pout Fish." She had once again played with her diaper instead of just going to sleep for nap time, and so I had to wash all her blankets. I didn't realize the book was wrapped in the blanket and didn't even think to look because she's not allowed to have anything in her bed with her! So...as I opened the washing machine and saw the chunk of book, I wasn't happy. :( Poor Miss Grace...
It has been a relatively nice day today. Brad and I are noticing that Grace has excessive emotion, energy, attitude...etc. SO we are starting to wonder about ADHD, well, at least I am. So Brad and I discussed it and we will be cutting out almost all sugar. I'm not going to be super anal scouring every single nutrition label (ok, maybe I will), but there won't be any more candy, chocolate, ice cream, maple syrup, granola bars, sweet cereal (actually, the only cereal she'll eat is Post Spoon Size Shredded Wheat), cookies, honey, and cakes. It's going to be hard because of my hectic schedule as it is, I don't know it I'm going to be able to homemake a lot of this stuff. Homemade: granola bars, bread, spaghetti sauces, crackers, and...other things. I'm still researching. And then we had a surprise...or two surprises. Grace was in her room for about 1.5 hours, and so I thought she was perfectly fine, playing with toys or reading books. But boy was I wrong. I was deep into homework and out comes Grace... "Pooooop." Dangit. I won't go into details but Brad and I were SO frustrated. I took a couple deep breathes and took her to the bathroom, took care of business, scrubbed down the bed and bed side guard, and got more laundry started. I can't wait for the "body anti-strip suit" to get here. We've tried everything we can think of...backwards zipped footie pajamas, taping the backwards zipped footie pajamas around her chest and covering the zipper, taping the diaper with duct tape some times and packing tape the other times, and having her wear socks on her hands so she can't manipulate the zipper. So I've decided on buying some button up shirts and some pants and sewing the two pieces together. So it will look like different outfits but they will actually all be one pieces. Hopefully this will stop her from stripping and... I will also be doing something like this with dresses as well. I'll buy some dresses that actually fit her (her's are a little too small) and sew some legging into the bottoms of them so she can't just lift the dress. Thank goodness for Deseret Industries!!! That way, if this ends up not working, the shirts/pants are only costing me $2-3 each.
We still haven't gotten the catheters we're supposed to be using. After our last visit to Primary Children's in Utah, we were told to catheterize every day with french 8 catheters (were using french 6 but they are too small). I've contacted our supply company over and over and keep getting the same answer "it's backordered." Ug. What a pain. So I'm really hoping we get them soon.
Shew...deep breath :) New things coming up that we will have to deal with, but we will figure it all out.
Amanda